The Quality of Life of persons with significant support needs: content validity of the Portuguese version of Escala de San Martín
Introduction: The measurement of the quality of life (QoL) is only now being used in Portugal in the intellectual disabilities (ID) field. Moreover, there is no instrument addressed to people with ID with significant support needs (SSN). The Escala San Martin was translated to Portuguese (PESM), according to the international guidelines for cross-cultural studies. Objective: The purpose of this study is the analysis of the content validity of the Portuguese version of the instrument. Methods: Measuring and reporting instruments’ content validity and Cohen’s Kappa is one of the first steps to accomplish in a validation process. PESM was applied to 52 adults (above 18 years) with ID, institutionalized and with great support needs. Results: Content Validity Indexes were determined and all items were relevant, with moderate agreement between experts. Conclusion: Findings pointed out the relevance of the items, indicating that PESM’s content is valid and adequate for the assessment of QoL of persons with low functioning levels.
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Alexandre, N. & Coluci, M. (2011). Validade de conteúdo nos processos de construção e adaptação de instrumentos de medidas. Ciência e Saúde Coletiva, 16, 3061–3068.
Brown, I., Hatton, C. & Emerson, E. (2013). Quality of life indicators for individuals with intellectual disabilities: extending current practice. Intellectual and Developmental Disabilities, 51(5), 316-332.
Buntinx, W. & Schalock, R. (2010). Models of Disability, Quality of Life, and Individualized Supports: Implications for Professional Practice in Intellectual Disability. Journal of Policy and Practice in Intellectual Disabilities, 7(4), 283-294.
Canavarro, M., Serra, A., Simões, M., Rijo, D., Pereira, M., Gameiro, S., Quartilho, M., Quintais, L., Carona, C. & Paredes, T. (2009). Development and psychometric properties of the World Health Organization Quality of Life Assessment Instrument (WHOQOL-100) in Portugal. International Journal Behavioral Medicine, 16(2), 116-124.
Claes, C., Hove, G., Loon, J., Vandevelde, S. & Schalock, R. (2010). Quality of Life Measurement in the Field of Intellectual Disabilities: Eight Principles for Assessing Quality of Life-Related Personal Outcomes. Social Indicators Research, 98, 61-72.
Cummins, R. (2005). Moving from the quality of life concept to a theory. Journal of Intellectual Disability Research, 49(Pt 10), 699-706.
Decreto-Lei n.º 3/2008, de 7 de janeiro. Diário da República I, n.º 4, pp. 154–164.
DeVon, H., Block, M., Moyle-Wright, P., Ernst, D., Hayden, S., Lazzara, D., Savoy, S. & Kostas-Polston, E. (2007). A psychometric toolbox for testing validity and reliability. Journal of Nursing Scholarship, 39 (2), 155–164.
Hartley, S. & MacLean, W. (2006). A review of the reliability and validity of Likert-type scales for people with intellectual disability. Journal of Intellectual Disability Research, 50 (Pt 11), 813–827.
Jenaro, C., Verdugo, M., Caballo, C., Balboni, G., Lachapelle, Y., Otrebski, W. & Schalock, R. (2005). Cross-cultural study of person-centred quality of life domains and indicators: a replication. Journal of Intellectual Disability Research, 49 (Pt 10), 734–739.
Li, C., Tsoi, E., Zhang, A., Chen, S. & Wang, C. (2013). Psychometric Properties of Self-reported Quality of Life Measures for People with Intellectual Disabilities: A Systematic Review. Journal of Developmental and Physical Disabilities, 25(2), 253–270.
Moniz, I. (2007). Modelo de avaliação da qualidade de centro de actividades ocupacionais. Lisboa: União Europeia Fundo Social Europeu, Governo da República Portuguesa, QC III, Segurança Social, Instituto de Segurança Social.
Polit, D. & Beck, C. (2006). The content validity index: are you sure you know what's being reported? Critique and recommendations. Research in Nursing & Health, 29(5), 489–497.
Santos, S. (2010). A Dificuldade Intelectual e Desenvolvimental na Actualidade. Educação Inclusiva - Pró-Inclusão: Associação Nacional de Docentes de Educação Especial, 1(2).
Santos, S. & Gomes, F. (2016). A educação das crianças com dificuldades intelectuais e desenvolvimentais vs. A convenção dos direitos da criança. Journal of Research in Special Educational Needs, 16(S1), 51-54.
Schalock, R., Brown, I., Brown, R., Cummins, R., Felce, D., Matikka, L., Keith, K. & Parmenter, T. (2002). Conceptualization, Measurement, and Application of Quality of Life for Persons With Intellectual Disabilities: Report of an International Panel of Experts. Mental Retardation, 40(6), 457–470.
Schalock, R. & Verdugo, M. (2013). The transformation of disabilities organizations. Intellectual and Developmental Disabilities, 51(4), 273–286.
Schalock, R., Verdugo, M., Bonham, G., Fantova, F. & van Loon, J. (2008). Enhancing Personal Outcomes: Organizational Strategies, Guidelines, and Examples. Journal of Policy and Practice in Intellectual Disabilities, 5(4), 276-285.
Schmidt, S., Power, M., Green, A., Lucas-Carrasco, R., Eser, E., Dragomirecka, E. & Fleck, M. (2010). Self and proxy rating of quality of life in adults with intellectual disabilities: results from the DISQOL study. Research in Developmental Disabilities, 31(5), 1015–1026.
Simões, C., & Santos, S. (2013). A Qualidade de Vida na Dificuldade Intelectual e Desenvolvimental: Operacionalização do conceito na Intervenção. Revista da Educação Especial e Reabilitação, 20, 41-57.
Simões, C. & Santos, S. (2014). Cross-Cultural Adaptation, Validity and Reliability of the Escala Pessoal de Resultados. Social Indicators Research, 119(2), 1065-1077.
Simões, C.; Santos, S. & Claes, C. (2015a). Quality of life assessment in intellectual disabilities: the Escala Pessoal de Resultados versus the World Health Quality of Life-BREF. Research in Developmental Disabilities, 37, 171-181.
Simões, C.; Santos, S. & Claes, C. (2015b). The Portuguese version of personal outcomes scale: a psychometric validity and reliability study. Intellectual and Developmental Disabilities, 53(2), 129-142.
Simões, C., Santos, S. & Biscaia, R. (2016). Validation of the Portuguese version of the Personal Outcomes Scale. International Journal of Clinical and Health Psychology, 16, 186-200.
Skevington, S., Lotfy, M., O'Connell, K. & WHOQOL Group. (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299-310.
Valdés, M., Soares, J., & Frota, M. (2010). Qualidade de Vida e Deficiência Inteletual. Em F. Assumpção, & E. Kuczynski, Qualidade de Vida na Infância e na Adolescência, 259-267, Porto Alegre, Brasil: Artmed.
van Loon, J., van Hove, G., Schalock, R., & Claes, C. (2008). Personal Outcomes Scale: A scale to assess an individual’s quality of life. Ghent, Netherlands: Stichting Arduin.
Verdugo, M., Sánchez, L., Martínez, B., Domínguez, M., Echarte, E., Fernández, S. & Hierro, I. (2014). Escala San Martin - evaluación de la calidad de vida de personas con discapacidades significativas. Salamanca: Universidad de Salamanca.
Verdugo, M., Navas, P., Gómez, L. & Schalock, R. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 56(11), 1036-1045.
Verdugo, M., Schalock, R., Keith, K. & Stancliffe, R. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49(Pt 10), 707–717.
Wassel, J. (2016). A review of Morais, Santos, and Lebre’s (2016) “Psychometric properties of the Portuguese version of the Éxamen Geronto-Psychomoteur” and the critique of the influence of scholar literature: A call for greater responsibility. Educational Gerontology, 42(7), 513-515.
Watkins, M. & Pacheco, M. (2000). Interobserver agreement in behavioral research: Importance and calculation. Journal of Behavioral Education, 10(4), 205–212.
WHOQOL Group. (1994). Development of the WHOQOL: Rationale and Current Status. International Journal of Mental Health, 23(3), 24-56.
Wynd, C., Schmidt, B. & Schaefer, M. (2003). Two quantitative approaches for estimating content validity. Western Journal of Nursing Research, 25(5), 508–518.
Yaghmaie, F. (2003). Content validity and its estimation. Journal of Medical Education, 3(1), 25–27.
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